"Don't let the fat chick beat you"?

I have been racing for about 5 years now. I am not a typical runner or even triathlete. I fight with serious medical conditions every step of the way, but each step makes me stronger. I have two boys both with special needs and I have learned to chalk that up to making me stronger as well.


It is with sad heart that I must report that lupus has won the battle this year, but trust me when I say the war is far from over! My racing days are not over by any stretch of the imagination. This is just a minor setback that will make me stronger.

Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Sunday, April 15, 2012

Sugar and Spice and Nothing Made of Salt

15 Apr 12

Everyone once in a while (seems more often at times) you end up with a week of complete and absolute upheaval, that was last week.  Health wise I am currently a guinea pig, I am off one med (that messes with lungs and liver), I get all sorts of lab work (I really wish they would learn I need those liquids too!), x-rays, EKGs and blah, blah, blah.  We shall see how all that turns out.
Training wise, this week went pretty well, sort of.  I got treadmill, spin, swimming and yoga in this week. I was supposed to run with the run group on Saturday, but Freddie had different plans! He decided to lay on my alarm so it didn’t go off.  But, Jose and I did some weight lifting in the way of yard work.

Today I experience something new…  I am used to the fact that if I eat something with a higher salt content my fingers turn into sausages.  Today, I was supposed to have lunch with my family (parents, sister and kiddos) but the place we were going is closed on Sundays! So my mom and dad decided to go home, but my kiddos were still hungry so we ended up at their favorite Chinese place.  Well, I know I have to be careful today I got a rude wakeup call to just how much attention I need to pay.  In less than an hour after eating I was feeling like crap, my legs were swelling and it was just no fun.  My legs are still swollen, but they are calming down some, I am hoping they will be all better tomorrow.  I return to my rheumy next week and this is something I will be bringing up with him. 

This week I planned on starting the Body for Life Challenge, but the protein drinks they require participates to use have to much sodium for me, so that is not going to happen.  I still want to do something similar, but it will be a slightly modified version.  I too before pictures and there is no way in hell I am posting them!

Tomorrow is Day 1, Week 1! Goal this week – 5 days of training!



~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Tuesday, April 3, 2012

Lupus Day Proclamation

3 April 2012
I am a firm believer in advocacy.  When I started racing I would make sure I would get at least one cancer racer a year because both my grandfather and my uncle died as a result of cancer.  I am still a HUGE supporter of Susan G. Komen, I try to do Tri for the Cure every year and last year I did Ride for the Cure (really enjoyed it).

It has been about four year since a doctor started talking to me about the possibility of having an autoimmune disease.  When the doc started mentioning Rheumatoid Arthritis (RA) all I could see was my life as I knew it was over.  When the RA blood test came back negative I assumed I was in the free and clear. I tried to ignore the fact that things were not right, but I knew damn well that there was something going on with my body.  Nearly a year later my primary care doc started putting one and one together and sent me to lab for a FULL work-up… My blood work came back and low and behold her suspensions were confirmed.  She asked if anyone in my family had an autoimmune disease, I had no idea what she was talking about.  She explained that I was showing signs of having lupus, but wanted to recheck my blood work in a few months.  I started doing research and not liking the answers I was finding.  Unfortunately there was no celebrity spokesperson for autoimmune diseases.  A few months later my test results were the same.  Since my doc is only a family practice doctor (and the best damn one I have ever met) she couldn’t officially diagnose me.  She put in a referral for a rheumatologist to figure out for certain if she was correct with her suspected diagnosis of lupus.  I did not realize just how long the wait would be, I figured a few weeks maybe a month, yea, right! It was a few months! While I was waiting I went into a flare up (not realizing what was going on at the time).  I hurt all over, I could not get rid of the feeling that an elephant was sitting on my chest, it was horrible!  When I finally got into see the rheumy I got to enjoy all the tests all over again (she wanted to make sure the lab didn’t just mess up), made me fill out an insane questionnaire, and politely informed me that I had better keep my job (with medical insurance) because I was no longer insurable.  Her bedside manor was horrible, she did, however, confirm the diagnosis of lupus.  After my second appointment I received a letter stating she would no longer be my rheumy and I had 30 days to find a new doctor, no reason was given.  After googling her I found out this is not an uncommon practice of hers.  Luckily there was a rheumy in my primary doc’s building and he was able to get in me within a couple of months! His whole office is great!  I have been with him ever since, I did get lectured when I ended up in the ER due to back pain and did not notify him right away, but I should have known better.

Long story short, hmmm according to my word count I am already over 500 words, so I guess it is to late for that!!!!!  Sadly, lupus is not a well-known disease.  Even sadder there is no cure.  My goal is to spread the word about lupus as much as I can.  One of the groups I support is Cure4Lupus.org, they are urging people to request a proclamation from their states’ governor to make 10 May 12 Lupus Day.  I submitted my on Sunday and got my proclamation today! I was so excited! So, here in Colorado the 12th of May 2012 is Lupus Day!



~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Friday, March 9, 2012

Un-Break My Heart

9 March 2012

Do you know Toni Braxton has lupus? SQUIRREL! Oh! And don’t ask about the video, I just like the song!!!
Heart rate training… Every time I go to spin class Tony (I love Tony, he is an awesome spin instructor [but I did cheat on him today]) goes on and on about Anaerobic Threshold (AT) and the different levels.  Which got me to thinking.  I can’t just listen to my breathing, thanks to my Methotrexate I get winded just going up a set of stairs at times.  So of course I started thinking about heart rate training.  Luckily a friend lent me a heart rate monitor while mine is on vacation (renovations have caused a lot of things to go on vacation!!!!!).  Yesterday while I was on the treadmill I kept an eye on my heart rate and my heart rate was pretty well behaved.  I get it that AT running is not the same as AT spinning.  I found one website that seems to have the most informative information (Heart Rate Training Zones), but I am still looking!

Today was “Active Recovery” day… so I decided I would check out what classes were being offered I found a few with the time range I was interested in and I settled on two.  Spinning (hello! I LOVE that class) and Hot Vinyasa. 
Again, I cheated on my all-time favorite spin instructor.   I attended spin class, I kept a very close eye on my heart rate.  We were not supposed to go into Zone 4, but I did sneak in a few times.  The class was great and then the instructor made a comment that got my goat up a little.  You get what you deserve” I understand where she is coming from what but I really wish she would think about it from more than just a fitness stand point.  I get the “if I eat three pieces of chocolate cake I am going to feel like crap.” I get it, I do.  But once I step out of the gym (or outside of the fitness world) I will throw down the BS card in a heartbeat!
Then it was off to Hot Vinyasa class.  I was a little nervous, but my primary doc did tell me it would be good for me, but make sure I spoke to the instructor before class; which I did!  My back was in heaven!!!!! Oh wait… she cranked up the heat and turned on the humidifier. I got toasty in there! After a few stretches my back was in heaven. I did have to keep taking breaks to get water and to get rid of the dizziness but I really enjoyed the class.  I realize this is going to make me sounds nuts, but I LOVE the pigeon pose! Love, love, love it! I was so happy when the instructor directed us into this pose.  My knees didn’t have any issues going into this pose and my hips loved being there.  I am tired, but I feel so relaxed!
Tomorrow group run! YAY!


~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Thursday, March 8, 2012

The Floor is Getting Closer!

8 March 2012
No, I am not getting shorter! Actually I have shrunk a bit (thanks to my back issues).  I made a comment to my sister about the floor getting closer and she through I lost my mind! I have never been overly flexible (unlike my younger son), thanks to yoga I have managed to gain a certain amount of flexibility, but the whole thing of putting weight on and having back issues that flexibility hasn’t been around of late.  The other day I had to pick something up off the ground and I had no issue bending over and grabbing it.  There was no squatting down it was bend and grab!

Today was my official weigh in day and I am so excited to say I am down over eight pounds!  That is with no calorie counting just keeping an eye on “mindless snacking” and making sure we have a salad with dinner every night.  I get cookies for dessert most nights (some nights I just don’t feel like it).  So YAY! OH!!!! That means I get a new pair of running socks!!!!!!!

This week I have been right on schedule for my training and tomorrow … ACTIVE RECOVERY—LOW-IMPACT CROSS TRAINING OR FULL RECOVERY IF NEEDED I am going to use this as aerobics class day!  First I am going to try to sleep in a bit.  Tomorrow morning I have a choice between Spin Class, Zumba, hot yoga, and regular yoga.  I have never been to a hot yoga class, but my primary care doc highly recommends it but told me in NO uncertain terms to make sure the instructor is WELL aware of my medical conditions and ask for help to adjust some of the poses to make sure I don’t get hurt.  Spin class… it isn’t with Tony L but it is still a possibility.  Zumba not sure how my back with like it.  Regular yoga is a very good possibility! I also plan on getting some pool time.  I had thought about it today, but I figured after my 3-miler I was good for the day. 
Here is to another great weight loss week and an even better training week!



~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Tuesday, February 21, 2012

Excuses!

21 February 2012.
As a mom of two preteen boys I am pretty sure I have heard every excuse in the book.  When I comes to training however there are a whole slew of excuses that I am sure we have all tried at some point in time.  Today my list of excuses are pretty good one and sadly they are legitimate.
1.     I am tired
2.    My back hurts
3.    I have an ear infection
4.    I have a head cold
5.    My knees are pissy
6.    My goggles leak
7.   
There will always be reasons why something can’t be done.  It takes true strength and determination to realize when they are just excuses and when they are reasons to take a day off. 
As for me today…
I’m tired. Really? It doesn’t matter what I do, I am always tired, it is a fact of life. It doesn’t matter if I stay in bed all day or go to the gym so I might as well go to the gym and be happy and tired!
My back hurts.  Ok, so don’t do something that makes it mad. Luckily I have found that spin class has no effect on my back.  Yea, my butt hurts but it was an awesome class. Some part of my body is always hurting, I have to decide what controls my life. 
I have an ear infection.  Ummmm, I am on antibiotics and there is a whole heck of a lot I can do about it.  When I am in the pool I wear ear plugs anyway. NEXT!
I have a head cold.  Ok, so bring tissues and make sure all the equipment is wiped down when done! Not hard.
My knees are pissy.  See above under my lower back hurts. 
My goggles leak.  I wanted to spend some time in the pool today.  Ok, so I only swam 100 meetings, but I wasn’t ready to get out.  So I kicked for a bit and when my knee informed me that was enough I stayed in the pool and ran for a while.
There will always be excuses and reasons not to train, and it takes a strong person to understand when it is an excuse that can (and most likely should be) be worked through. 
There is a quote I remind myself of when I am having rough days… I might have lupus. But it doesn’t have me!





~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Wednesday, February 1, 2012

Here we go!!!!!

Don’t Let the Fat Chick Beat You has gone on vacation until the end of October, but this is for a very good reason!
Here we on 1 February 2012. In 263 days I will be toeing the line at my first iron distance triathlon.  I had dreamed of that day for a few years and I am finally on the on the road. I realize this road is going to rough under ideal circumstances; this journey for me will be very interesting.  I have to ensure I keep a VERY good balance of training properly for the race but not pushing to hard that I end up in a lupus flare up.
During these next 263 days I am keeping my races to a minimum. Between now and 20 October 2012 I have a half marathon (March 2012), a full marathon (May 2012), a sprint triathlon (August 2012) and the training plan I am working off of also calls for an Olympic and a Half Iron distance triathlon.  If I do any more triathlons, I am up for the half iron distance (September 2012), but I haven’t found any Olympic distances that are within in the time frame recommended, not to mention I don’t want to push that much. 
“Official” training doesn’t start until the beginning of May 2012.  I have three months of marathon training to get me ready for the harder workouts.  I have my marathon training schedule, but I still have available time to work with weights, get bike time and happily… pool time!
Part of this journey will also be an experiment!  I can’t help but wonder how my lupus will respond; I am well aware of the fact that I HAVE to be very careful that I do not overdo it and end up in a flare up. Because of this wonderful disease I am on some nasty medications:
*      Iron – I get anemic
*      Melatonin – if my friend insomnia comes to visit more than three days in a row
*      Methotrexate – lupus – takes the pain level down noticeably
*      Omeprazole – antacid – I LOVE this stuff
*      Flexural – muscle relaxer – thank goodness I don’t need these very often! (My family loves it when I am taking these “free entertainment”)
*      Vitamin D3 – vitamin D3 deficient (thank you lupus)
*      B12 – vitamin B12 deficient (thank you lupus)
*      Plaquinil – lupus
*      Vicodin – MAJOR pain pill – again, luckily I don’t have to take it very often!
*      Folic Acid – to counter the methotrexate
*      Levothyroxine – hypothyroid
*      Mobic – anti-inflammatory
Only three of these I do not have to take on a regular basis. I refer to Saturday nights as “Pharmacy Night” and at 34 years old that is just stupid.  I am posting this list and I am hoping in 263 days that list is shortened (not sure how, but it is worth the shot!) On a side note… thanks to methotrexate I get to go to the vampire every six weeks because this medication is so harsh it can wreck major havoc on the liver. 
With all that said the next moth looks like the following:
5
Misc/Rest
3
10
Cross
2/1/2012
2/2/2012
2/3/2012
2/4/2012
2/5/2012
3
Spinning
5
Misc/Rest
3
7
Cross
2/6/2012
2/7/2012
2/8/2012
2/9/2012
2/10/2012
2/11/2012
2/12/2012
3
Spinning
6
Misc/Rest
3
12
Cross
2/13/2012
2/14/2012
2/15/2012
2/16/2012
2/17/2012
2/18/2012
2/19/2012
3
Spinning
6
Misc/Rest
3
13
Cross
2/20/2012
2/21/2012
2/22/2012
2/23/2012
2/24/2012
2/25/2012
2/26/2012
3
Spinning
7
2/27/2012
2/28/2012
2/29/2012

The “Misc/Rest” and Sunday “Cross” are my flexible days.  These two days I am going to either take a day off or participate in quieter activities; yoga, Pilates, etc.
Here is to an interesting 263 days!




~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~