"Don't let the fat chick beat you"?

I have been racing for about 5 years now. I am not a typical runner or even triathlete. I fight with serious medical conditions every step of the way, but each step makes me stronger. I have two boys both with special needs and I have learned to chalk that up to making me stronger as well.


It is with sad heart that I must report that lupus has won the battle this year, but trust me when I say the war is far from over! My racing days are not over by any stretch of the imagination. This is just a minor setback that will make me stronger.

Showing posts with label Rheumy. Show all posts
Showing posts with label Rheumy. Show all posts

Wednesday, May 23, 2012

Don't do that honey!

Last night my old friend insomnia hit me, again! Or is it still, either way I was up much later than I wanted to be. So this morning when it was time to get up it was a bit of a struggle.  I did get up and off to the gym I went wear a Sparkle Skirt a dear friend gave me.  This was the first time I had ever worn that brand, I wasn’t too sure about it.  Typically, my fluffy belly bounces the waist down (so I am pulling it up ever three seconds and my “tree trunk” legs make the shorts go up (typically I wear capris under my running skirts).  I got on the treadmill (I have a 51 minute run on the books today) and I did my five minute warm up and everything was staying put except the rock in my shoe.  Ok, on to the walk 1 “run” 4 minutes… After 40 minutes of that I had done no skirt fixing, the last 6 minutes I was doing sprints and STILL no skirt fixing!!!!! It is nice that a company has made a running skirt that works on fluffier athletes!

As far as the pool went today it wasn’t anywhere near as successful as the run was.  I have blister on my feet and pushing off of the wall was not fun, my iPod died so no music while swimming and I just couldn’t get into it. So after 300 meters I called it quits and hit the hot tub (I have time before my doctors appointment tomorrow to hit the pool so I will try it again tomorrow!).
I get the in the hot tub and I know it is not great for one’s health but it is soooooo relaxing.  At first I am in there by myself, then a mom and her child come over (there are signs everywhere saying not for children under 12).  Mom tells the kid to sit on the edge.  Next thing you see kid has his feet in the hot tub, then his legs then he is up to his waist and then he is all the way in.  When his mom FINALLY notices she tells him to get out… what does he do? He just stares at her and continues to walk around in the hot tub.  I am sorry, but I would drag his butt out if I were his mom and he ignored me like that.  People wonder why kids are such problems these days!

Oh well! Tomorrow is pool time and a bike ride (hopefully I will actually be able to get some time on my bike.



~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Sunday, April 15, 2012

Sugar and Spice and Nothing Made of Salt

15 Apr 12

Everyone once in a while (seems more often at times) you end up with a week of complete and absolute upheaval, that was last week.  Health wise I am currently a guinea pig, I am off one med (that messes with lungs and liver), I get all sorts of lab work (I really wish they would learn I need those liquids too!), x-rays, EKGs and blah, blah, blah.  We shall see how all that turns out.
Training wise, this week went pretty well, sort of.  I got treadmill, spin, swimming and yoga in this week. I was supposed to run with the run group on Saturday, but Freddie had different plans! He decided to lay on my alarm so it didn’t go off.  But, Jose and I did some weight lifting in the way of yard work.

Today I experience something new…  I am used to the fact that if I eat something with a higher salt content my fingers turn into sausages.  Today, I was supposed to have lunch with my family (parents, sister and kiddos) but the place we were going is closed on Sundays! So my mom and dad decided to go home, but my kiddos were still hungry so we ended up at their favorite Chinese place.  Well, I know I have to be careful today I got a rude wakeup call to just how much attention I need to pay.  In less than an hour after eating I was feeling like crap, my legs were swelling and it was just no fun.  My legs are still swollen, but they are calming down some, I am hoping they will be all better tomorrow.  I return to my rheumy next week and this is something I will be bringing up with him. 

This week I planned on starting the Body for Life Challenge, but the protein drinks they require participates to use have to much sodium for me, so that is not going to happen.  I still want to do something similar, but it will be a slightly modified version.  I too before pictures and there is no way in hell I am posting them!

Tomorrow is Day 1, Week 1! Goal this week – 5 days of training!



~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Saturday, June 4, 2011

New Rheumy, to much homework and Elephant Rock

Well, yesterday afternoon was my appointment with my new Rheumy.  I have to admit I was really hoping he would tell me he did not agree with the previous diagnosis.  I got there and it was a nice little office, but couldn’t help complaining to myself that I am just to damn young to be sitting in a doctor’s office like that.  I finally got to the back and the doc came in and introduced himself and first thing I noticed was his bed side manner was a lot better than rheumy.  He actually talked to me not at me, he asked me questions, listened to what I had to say before jumping to conclusions.  He looked over my records did a physical exam and then told me I do have lupus but he isn’t so sure about the RA (I was happy to at least possibly have one knocked off the list).  I had to have even MORE blood drawn and got to pee in a cup again!  I got back in a month, but I can say, happily, I think this doc is a lot better than the other one. 
I did not make it to my run this morning, I just have WAY to much homework to get done.  I am about half way done, sort of.  Tomorrow I am still planning on the bike festival.  Baby (my bike) went into the bike shop today so they could readjust my thingy (I have no idea what it is called, but it is the track thing for the chain on the front), he also did a quick over to make sure everything was good.  I am only doing the 34-miler tomorrow but I am looking forward to it.  I will be wearing my Sam I am shirt!!!!!!  LOTS of sunscreen and I will be prepared to pay the price for being in the sun that much.  I don’t care, I will have fun! 
I hope everyone has a great weekend!


~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~

Thursday, May 12, 2011

 Last week after getting back from Fort Collins I had a certified letter postcard on my door.  I put it in my car and forgot about it until yesterday.  I figured I would swing by the post office on my way home from work, I stopped in had a good joke with the mail person and she gave me my letter, it was from my rheumy’s office.  Ok, must be a bill.  I got to my car opened it up to read…

Excuse me? No reason why, nothing just not going to treat you anymore.  I went home and took some pain pills (my shoulder is hurting something fierce). While laying on my bed (allegedly calling everyone mommy) I googled her and found…
VITALS Comments
Apr 7, 2011


THis is one of the worst doctors I have ever seen. She never looked up from her computer, typed the entire time I was in the room, and gave me an extremely poor and depressing outlook for my diagnosis. When I went to another rheumatologist I could not believe how positive and uplifting he was. He gave me hope that I could manage my disease. I would NEVER refer anyone to this doctor or this practice.

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Feb 20, 2011

EXCELLENT STATE-OF-THE-ART CARE; WONDERFUL PERSON

I could not have asked for better rheumatoid arthritis care than I have received from Megan McNeil. She is very intelligent and follows state-of-the-art protocols. In addition, her manner is courteous and warm. I would not change doctors-- I have the best care in the world with Dr. MacNeil.

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Nov 23, 2010

VERY BAD EXPERIENCE

I saw Dr MacNeil and it was a bad experience. The Dr had already made up her mind before listening to my story. She typed continuously in her computer and didn't look at me during that time. She didn't show any emotion or caring toward me and my problem. She snapped at me and my husband when she diagnosed me as having Fibromyalgia and told us "It's a real disease" - which we knew. She never smiled the entire time. I let her know that I'd not be coming back to see her and provided constructive critism, but what I received was a certified letter stating that she would not longer see me and that I needed to find a new doctor to provide me care. It was a strange letter, but I guess we were in agreement that this relationship wasn't going to work.

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Jun 7, 2009

AMAZED

The other reviewers seem to have seen a very different Dr, than my experience has been! My experiences were a Dr. that didn't even look up from her laptop while talking to me. Was so eager to take an exact time frame, that even when called out of the exam room by another Dr. came back with only a couple minutes left for me & didn't change, in spite of being out of the room much of my appointments. Did not take the symptoms & side effects seriously on meds that were not working after almost a year. Treated me like I was overly dramatic, had zero bedside manner, and gave me the feeling she didn't think I was worth the effort. As a result I felt I was getting worse, finally after being treated with NO compassion & NOT being listened to, or changed on my regime once again, I left for another Dr. & practice that has validated my concerns, gotten me on an agressive treatment & I am now doing better than the year plus I was seeing her.

Good news is, this morning I called one of the docs on her list (who just so happens to be in the same building as my normal doc) and I have an appointment with him in less than a month.  The office staff is a whole lot nicer and I think this will be a good move.  I am not sure about Dr. MacNeil though!





~If you hear that someone is speaking ill of you, instead of trying to defend yourself you should say: "He obviously does not know me very well, since there are so many other faults he could have mentioned"~